Monday, December 31, 2012

My Year in Review

Oh my stars!  I can't believe that 2012 is (almost) over and 2013 is on its way in..

What a great year it has been, for what I saw of it, anyways!

2012 brought so many wonderful new memories for me!  I emerged from my nine-month hibernation into this great, big world and met Mama and Daddy for the first time!  I also got to meet all of my very special family members and many, many new friends for the first time too.
I've also learned to do so many wonderful things in the past 8 months like roll over, sit up, eat real food, play, clap, and 'talk' (to name a few).
I have had so, so, so many wonderful adventures and I've visited lots of new places (Michigan, Kansas City, Cincinnati).  And I've had a few first real heartaches too..

But, Mama and Daddy tell me that there will always be good things and bad things that happen in life, but that the good always far outweigh the bad.
They say that I should always stay happy and look for the good in all people and that I should try my best to do good things and help others because this is the way it should be.  Right now all I can really do is give out smiles, and I do that often, so I am trying my best to be a good listener!!
No matter what, the good and the not so good, 2012 was a great year.  I mean, how could it not be?!

To all of my family and friends, may you have love, good health, and good fortune in the new year.  You all mean so much to me and I couldn't be more grateful for all of your tremendous love and endless support.  Although I can't talk just yet, I think you can see my happiness, gratitude and love for life just by seeing all of my smiles each and everyday!

For those who have gone away in 2012, we all miss you so much, but I know that you are still here impacting our lives through your wonderful spirit and showing us love through the memories you have left for us.  We will always have you in our hearts.

I hope that you had a great 2012 and that 2013 is even better.  I just cannot wait to see what 2013 has in store for me!!  I'm going to crawl soon, and then I will be 1 year old..oh, I can hardly wait for all of my new adventures!!

Many, many, many happy adventures to you as well.  Let's all strive to do good things and be nice to each other this year.  I know we will all make a real difference.

Lots of hugs and smooches!
Maggie Shae, signing off for the last time in 2012...
Stay tuned for more of my adventures in 2013!

If you can't read it, my sign says: 
Happy New Year! 
All the best to you and yours!
Happiness, good fortune & lots of love

Tuesday, December 11, 2012

12-12-12

Happy Holidays!
I'm officially another month older today.  How exciting!
Here's a fun fact: the next time something like 12-12-12 happens I'll be 89 years old!



Here is an update on all things Maggie Shae:
*I am sleeping on my belly more and I can almost get myself to sleep now (that is, if I want to!)
*I do things with purpose and I know what I want!
*I practice turning pages in books, but mainly just to put them in my mouth...
*I love to practice feeding myself with a spoon, but I usually just end up feeding my shirt
*I love songs being sung to me (I'm a Little Teapot is a new favorite)
*I 'post up' on my tummy, raise my toosh and kick my legs to get things that are out of reach, I think soon I will be crawling!  If I can't get to it I just maneuver my way over by rolling and stretching..I am so smart!
*I LOVE looking out the front window at the cars, people and dogs below.  Sometimes I wave to Daddy when he goes to work.
*Here are just a few of my favorite books: Horton Hatches the Egg, Peek-A-Boo Baby, In the Woods (my very own family book), It's Time to Sleep, My Love, and any Sara Gillingham books (thanks for the whole set Aunt Brandy and The Rys clan!)
*I talk...a lot
*I can turn on my mobile in my crib all by myself (I did it this morning for the very first time!)
*I am over 26 inches and I now weigh over 16 lbs - I'm getting big!


Grammy
Last weekend Grandma came to Chicago for a visit!  We had such a wonderful time and we all were so excited to see her!
We hugged and laughed, and I loved pulling on her hair (I don't know, it's my new thing).
On Friday night we went to the Zoo Lights at the Lincoln Park Zoo and it was so colorful and magical.  I loved it! What a way to start the celebration of my very first Christmas.
On Saturday Mama spent the day shopping downtown at the One of a Kind Show with Grandma, Nana, Aunt Katie, Celeste and Patty J while I spent time with Daddy.  Then, that night, we wrapped presents and I snuggled with Grammy.
Sunday was the mother of all wondrous days...I got to open up my very first Christmas present!!!
This gift thing is awesome.....and now I hear about this Santy Claus guy who comes and brings me more presents?! I have no words.
For now, just feast your eyes on this: 

Concentrate...I can do it.. 

Yay! Just what I always wanted!!

Here I am playing in my new baby play-pen..
Um, I mean, Discovery Sounds Activity Garden
Thanks Grandma!

The holidays are such a wonderful and special time of the year.
It's so nice to get to see all of the people that I love.
And for those I don't get to see, I love you very much and you're always in my heart.
Have a very special holiday!
xoxo, 
Maggie Shae (& Family)

Here I am, a little Christmas elf, with Mama, Daddy and our Charlie Brown tree
















Thursday, November 29, 2012

Another Visit to Children's, and More..

Wow, November has really flown by!
Let me fill you in on all of the wonderful adventures that I've had these past few weeks...

Happy Birthday Daddy!
My Daddy had his birthday on the 19th.  My Mama and I walked up to a cute little cafe and bakery called Bittersweet and spent way too much on cute little tarts and cakes for him, but it was well worth it for that special guy.  Then Nana and Papa came to visit and we all went to one of my Daddy's favorite places...A Scottish Pub!  My Mama and Daddy say that they just want me to be cultured, so they like to take me to all different places.  I guess they were teaching me about Scottish tradition.  One thing I learned: those Scots sure do enjoy their beverages!
Later on I went to Nana and Papa's house while Mama and Daddy went out to celebrate with friends.  I had a great time that night!  It was a great birthday..and I hope my Daddy had fun too ;)

Thanksgiving
It was my first Thanksgiving, and this is what I learned: Thanksgiving rocks!  Play, stuff your face and have a dance party with your family? Awesome!
Mama, Daddy and I made the road trip to Gramma's house and I did a great job in the car.  I was so excited to see Gramma!  The next day we cooked (well, let's be real here, Gramma cooked) all that delicious food and then everyone came over.  I had so much fun watching my cousins..they are so crazy!  We played and played and it was a very fun time.  Then finally we ate.  All that time spent cooking the food and it didn't take us very long to eat it!  Before I knew it we were all done, and then the real party started!  We moved the coffee table and played a funny dancing game.  Everyone got into it.  Well, everyone but Daddy..what a pooper!  I don't know what he was so afraid of, everyone knows that Mama, Aunt Brandy and Gramma don't have a problem making fools out of themselves!  But I guess Daddy needed a little warming up because at the end everyone was dancing!
Anyhow, my first Thanksgiving was a real hoot.





A Special Visitor                                                                                                                                A special visitor came to see us.  It was Melissa from the OI Foundation.  She was in town and met us for dinner at a very special place called Mrs. Murphy and Sons Irish Bistro.  It is one of Mama and Daddy's favorite places because it's where they got married, back when I was just a glimmer in their eye...as they like to say.It was so nice for us all to meet Melissa, and Mama and Daddy were very excited about it.  The OI Foundation has really helped us learn more about OI, and they help support us as we continue to raise funds and awareness for programs and research to one day find a cure.  Melissa and everyone she works with are so helpful and encouraging while we learn how to do all of these new things.  It feels very special to know that there are many people out there helping us along the way, and we were glad she took time out to spend it with us.  Thanks Melissa!  

A Visit to Children's
I had a check-up at Children's.  I go see the Genetics and Ortho teams at the Skeletal Dysplasia clinic there every few months.  Mama and I took a train ride downtown and then we walked along the busy street to get to the new hospital.  We used to go to the one closer to home and we would drive or walk, but they built a brand new hospital right smack in the middle of The Magnificent Mile, so we met Daddy there for our appointment.  And it sure was magnificent!  I couldn't get enough of all that was going on around me as we walked there.  And when we arrived I was real excited to see Daddy!
We see two very good doctors there, and they sat with us and answered all of Mama and Daddy's questions....every. single. one. of. them!
Mama and Daddy told me that at one time they weren't sure if they liked going to this hospital because some pretty scary things happened to me, and them, when they first brought me there.  But I think they have changed their minds because each time they meet with the doctors they seem to like it more and more. 
(I think it helps that each time we go we seem to get better and better news!)
And here it is:
They say I look great!  (And I could've told you that!)
They say that my ribs don't look thin, as was told to Mama and Daddy in the beginning when this all started.  They also said that there is no compression fracture in my spine as well (or any issues with my spine to be exact), as was originally told to us in the beginning. Which gave my Mama and Daddy a great big sigh of relief!  What great news!! 
The doctors said that because I seem to be meeting my developmental milestones and growing and getting stronger that this is a very good sign for my future.  We thought that, but it's always good to get reassurance about these kinds of things!  Especially from 'the professionals'!
You see, OI is not black and white.  It is very, very, very gray.  The spectrum of characteristics is very, very broad, even in people with the same "type".  The good thing is that they say I seem to be much more intermediate than severe (which is what they originally thought I was) and they continue to say that they don't think I need treatment, for now.  And that's good for me because I get enough needle pokes as it is at the pediatrician..hmpf!!  Also, they said they don't need to see me again for 6 months (instead of 3, as they were seeing me before) since I seem to be doing so good - yay me!
I still need to be treated with care because the likelihood of me breaking something at some point in my life is greater than most, but all-in-all they were very pleased with how I'm doing.  And so are we!  
I also think it may have something to do with my special Guardian Grampa watching over me. 
What a great way to end a great month...

December, here I come!

And here are some pictures from Thanksgiving:


   
I miss my Michigan family and hope to see you soon!

                                      










Wednesday, November 14, 2012

7 Months!


Happy Birthday to me! 

I am 7 months old now, can you believe it?!
That silly Elephant just seems to be getting smaller and smaller...

And something else special happened on my birthday.   After I went to bed it snowed!  The first snow of the season.
 I didn't get to see it because I was dreaming away, but Mama and Daddy said that there will be plenty more of it to come in the next few months.

I'm so excited for my very first Thanksgiving to come!
I hope you have a very happy thanksgiving too.

Lots of hugs, 
Maggie Shae


See? I'm 7 months old!



Thursday, November 8, 2012

Too Happy Today

There are so many things to be thankful for today, and everyday, aren't there?

I am learning very quickly about all of the things I have to be thankful for, and what better time to share  all of them?  It is, after all, the month of giving thanks.

Sometimes I see tears in my Mama's eyes, but she is smiling and happy.  She says that sometimes one little good thing happens in her life that can completely change the way she looks at things altogether.  She says a lot of these little things have been happening in her life lately.
Mama says that sometimes people are so busy that they look right past all of these little things, and then it becomes easy to look past all of the little things all of the time.  She says that because of all of the things that have happened in our lives over the past few months, good and bad, she has really gotten to thinking about all of the 'little things' and she says that she'll just never be the same.
She says sometimes her heart feels so big that she's afraid it will burst right out of her chest.  I get concerned because that sounds painful, but she tells me that it is just the opposite of painful, it's lovely and beautiful and the most wonderful feeling you could ever have.  She says she feels like crying because she is so happy and thankful.
Now, often times I understand what my Mama is telling me, but sometimes she just plain confuses me!
Crying because you're happy?!  I cry for just about anything I need these days (since my language skills have not yet caught up to my writing skills) but being happy isn't one of 'em!  I guess it's another one of those things I will learn as I get bigger...

I thought about all of the things that I'm thankful for, and here's my list (in no particular order!)

I'm thankful that I have a wonderful life, and here's why...

Daddy! He works so hard and is so kind and loving to me and Mama
My family (my whole, big family!) is so helpful, supportive and understanding and love us unconditionally
Grandpa Tom and his whistles and happy smiles - I know I will learn so much from you
Grandma Corinne for always holding me and cuddling me so good
Nana for always singing to me
Papa for always letting me listen to The Who, The Beatles, Elmo, Hall and Oates (the list goes on and on!) and always talking to me and keeping me company
All of my aunts and uncles who love me so much
All of my cousins - Tommy, Carter, Carolyn, Erin & Adrienne- who will teach me so much and are so gentle to me and so happy to see me always!
Our friends, co-workers, acquaintances, and even strangers (who now aren't strangers anymore!) who check up on us and have opened their hearts to us, supported us and kept us in their thoughts and prayers
I have a nice place to live, I have good doctors and I will have good teachers one day
I will have lots of opportunities to do whatever I set my heart on, and Mama and Daddy have jobs
I live in a country where we are able to believe what we want to believe and make our own choices regarding this and, better yet, we can fight for those who are less fortunate or in need
I am growing and thriving and I'm such a happy and (from what people tell me) smart little girl

Mama, Daddy and I couldn't be more thankful for it all


Lots of hugs!
 Maggie Shae




 

Sunday, November 4, 2012

I'm 6 Months/Halloween!

October 12, 2012 - I'm 6 Months Old!




I know I say this every month, but so much has happened this month!
I can't believe how much I am growing and changing, and neither can my Mama and Daddy.
My two teeth have come in and are getting bigger and bigger.  I like to use them to chomp on things like my socks and toys..and sometimes stray adult-sized fingers!  I am really interested in all of the things that other people put in their mouths too, and I can't wait to get my hands on all of that tasty looking food!  For now it's just oatmeal, fruits and vegetables and I really love them all...except peas (ew!).  My Mama and Daddy tell me that I will try some new stuff when it's Thanksgiving time (I hear mashed potatoes are delicious!).
I am practicing sitting up and have even tried it once or twice with out anyone holding on.  I need to keep practicing and getting stronger so that I can sit up on my own soon.
I am still a very smiley and happy girl.  I love to read, hear the ABCs, and take baths (I get so excited about baths!).  I love being tickled and I give a big belly laugh.  I love, love, love to play peek-a-boo and I even try to do it myself!  I also like to lay on my tummy and put my head down and when someone says "peek-a-boo!" I lift up my head and smile.  I love to touch people's faces and pull on their noses, and I also show people that I love them by touching their faces very gently. I love to hum and 'sing' and I do this all the time now.  I'm just warming up my voice for when I can really sing!  I also love to look out our front window.  I get propped up on a pillow and I watch all the cars and people and dogs go by below.  It's very exciting!
I have started to become more aware of my surroundings and sometimes I can get a little scared if Mama or Daddy go away or I'm not used to where I am, but I warm up quickly.
I also have become much more comfortable grabbing things..everything really!  Any chance I get I try and pull and grab.  Usually it's when I'm on my changing table.  I try to grab my pink tutu hanging on my cowgirl hook because it's so colorful, and the wipes because they make a fun noise!  I know how to get people's attention by play coughing or talking really loud.  My Mama and Daddy tell me that my personality just keeps coming out!

October sure had a lot of fun times!  I went to my first pumpkin patch and I got dressed up and went trick-or-treating three times! I got to visit my cousins in Michigan and trick-or-treat with them, Mama and Daddy took me near our house in Chicago, and I also went to a block party with my friend Sadie.   It all sure was fun, and I can't even walk or say "trick-or-treat" yet.  I can't wait for next year and the years to come!
Here are some pictures of my Halloween adventures 2012:


costume #1: Hoot! Hoot!






My 1st time trick-or-treating!

 costume #2, Quack!           

  
  costume #3, Roar!                  

My new favorite pastime

                                      
My Mama and Daddy just keep saying that they can't believe the time has gone by so quickly.  So much has happened in these first 6 months, and I am so thankful for all of the people in my life who care about me and my family.  I know that my Mama and Daddy feel very lucky to be surrounded by so many positive people who constantly shower us with love and happy thoughts too!  We love you all so much.  Now, onto Happy Adventuring in November... 

Saturday, October 27, 2012

My Grandpa

Hello friends,

Sorry it's been awhile.  A lot has happened in my little life in the past few weeks, and some of it is a little bit sad.  You see, my Grandpa was pretty sick for a long, long time.  He really didn't want many people to know because he was such a kind, wonderful person.  He wanted to keep fishing and riding his four-wheeler and building Grandma shutters.  He didn't want to get old and feel sick anymore.

But one day last week my Mommy and Daddy woke me up real early in the morning and said we had to go quick to see him because it was time to say good-bye.  I could tell that they were sad and I was confused because I don't ever see anyone being sad.  My daddy was being very nice to my Mama, which isn't anything new, but my mama was pretty quiet while we drove.  She even cried once when my aunt called to say, "please hurry".  It was a cloudy day.  The clouds were very low and sometimes it looked like we were driving right through them.  My Mama said it reminded her of a special picture of my Grandpa in his boat, heading out to fish on the lake one misty morning.  But something special happened and I know it was because of my Grandpa.  My mama saw a little rainbow peak out between the clouds as we drove and it made her feel much better.

We drove and drove and finally made it to the big building  My mama got out and Aunt Shannon and Aunt Brandy were waiting for her and they all went inside.  Then my Daddy took me to my Uncle Ken's house to play with Carolyn and Erin and Tommy. Late that night my Mama came there too and she told me about my Grandpa smiling when he saw her and talking to her in the place called 'the hospital'.  She said that she was glad she got to see him and he looked very peaceful and he rested a lot.  She said many, many people who loved him where there too.  They were all talking to him, telling lots of stories about his life, singing, listening to his favorite music and even watching the Michigan/Michigan State football game with him, just as he would've wanted.  Later that night Uncle Ken and Tommy went there to see him too.  My Mama said it was one of the most beautiful things she has ever seen.  She said Grandpa would wake up and would say hello to all of the people coming to see him, friends, nieces and nephews, aunts and uncles, brothers and sisters. Everyone would smile and maybe even cry a little.  But she said it was okay to cry.  I'm not really sure I understand all of this because I'm new, but my Mama said that one time that day my Grandpa woke up a little bit and everyone leaned in to listen.  He said, "they're all here now" and he mumbled something that was hard to hear, but he said something about a "smoke screen".  She said that everyone felt happy because it seemed like he was peaceful and wasn't scared to go to the special place where the smoke screen was.

I know I am new to the family and all, but I am very thankful to be a part of it.  I am learning that, above all else, being funny and being happy are two things that we really, really love to do.

The next morning was a Sunday, and when I woke up my Mama had already gone back to the hospital.  Daddy said she went back there to bring food and coffee because some people had slept there with my Grandpa.  Some people even slept in their car there because they love him so much and didn't want to be far away from him.  Daddy and I played with Uncle Ken, Carolyn, Erin and Tommy that day too and then, guess what?  I even got to go to the hospital too, although I couldn't go into where my grandpa was because they said there were too many germs.  But my Daddy got to go in to see him and my Mama was glad about that.

My Grandpa went to a special place on Sunday, October 21st 2012 just a little after noon time.  It was beautiful and sunny outside and everyone kept saying that it was a great day for fishing, which my Grandpa would have loved.  The leaves on the trees were all kinds of beautiful colors and Mama said that it reminded her of being a little girl at her old house where their were lots of trees.  She said that Grandpa taught her and her sisters all about nature and loving the country.  He loved it when they all would take drives on the dirt roads and through parks.  When my Mama was growing up she lived in the country and there weren't any big buildings.  There was a lot of grass and fields for cows and corn and soy beans, which doesn't make any sense to me because the place I live has all kinds of buildings and sidewalks!  She said that my Grandpa loved life so much that sometimes in the early morning he would even open up his window and shout, "gooooood moooorning America!".  My Grandpa was a very silly and happy guy.  I can't wait to hear more stories about him.

Everybody said they were happy and sad at the same time about my Grandpa going to this special place. I don't really understand that yet because I think it's sad when people go away, but I know I will understand one day.  All I know is that each time someone cries about Grandpa they also laugh, so I know that my Grandpa made a lot of people feel happy.

A few days later everyone got all dressed up.  It was a beautiful day and it was even hot like summertime.  Great weather for golfing, fishing and playing baseball, my Grandpa's favorite things.  People laughed and said that Ranger Tom (his nickname) must have made this weather nice for us all to celebrate his life together.  We went to a big party for him and there was even a piñata!  My Mama said that was special because they always had piñatas at their family parties when she was a little girl and it made everyone very happy.  There were hundreds of people there and it was one of the most beautiful things I ever did see.  People were hugging and so happy to see each other.  People came from all over!  Places I have never heard of: California, Florida, New York, Arizona and lots of other places, just to tell stories about my Grandpa and show him how much he meant to them.  The whole room was bright and full of beautiful colors, just like those trees the day he went to that special place...yellow and orange and red, the colors of love and happiness.  I didn't even take a nap because there were so many people and I didn't want to miss a second of all the was happening around me.

Grandma, Aunt Shannon and Brandy and mama kept saying that it was just how Grandpa wanted it and you know what, it felt like Grandpa was right there with us.  There were all kinds of pictures of my Grandpa and everyone kept saying that it was nice to see him "just as I remember him."

Remember how I told you about that rainbow my Mama saw?  Well, we learned that my Aunt Shannon saw a rainbow too, and my mama's cousin took a picture of a little rainbow that she saw at my Grandpa's big party.  I remember my Grandma saying, "I wonder what our sign from Grandpa will be?", well, I think the rainbow must be it.  My Mama remembers being a little girl and my Grandpa would say, "look for a rainbow," after a good rain when the sunshine would come back out.  I think it's my Grandpa's way of saying, "It's ok. It felt gloomy like rain when I went away, but look for the rainbow because now you know that I am not hurting anymore.  I am just as you remember me.  I'm laughing, fishing, and playing".  I like thinking this way because every time I saw Grandpa he was always smiling.

Something else very special happened to my Mama right before my Grandpa went to his special place.  A day or two before we left early in the morning to come say good-bye my Mama was asleep.  It was very, very early in the morning and still dark outside.  She had no idea what the next few days would bring, or that we would soon have to say good-bye to Grandpa.  She said that, in her dream, her Dad yelled, "Jessica!", and she opened up her eyes and woke up.  She said it wasn't a scary yell, like he was mad.  Instead, she felt calm and it was a yell like my Grandpa used to make when she was out in the yard as a little girl, climbing trees or daydreaming in the grass and my Grandpa would yell from the deck, "Jessica! Look at the hot-air balloon!"  Mama said she lay in the dark that morning and thought to herself, "why did my dad call me? I hope he is alright," and after a few minutes she went back to sleep. Now she knows that he was just giving her a heads up, "Get ready, Mud-Pie."

I love my Grandpa very much, and now I know how much everyone else did too.  I'm a very lucky little lady to have known him and he made this world a better place with his kindness and generosity.  I know my Mama tries hard to be as good a person as he was, and I will too.  What did we do to have such a wonderful man in our lives?  I'm not sure, but I know that his loving soul lives on through our happiness.  I love you Grandpa.

Here I am on my birth day with my very special Grandpa Tom

Here's my Grandpa in High School, what a handsome guy

Here's my Grandpa doing one of his most favorite things. What a pretty picture.
This is how my Mama likes to remember him.

Thursday, October 11, 2012

Shriner's Part 3 and My 6-Month Check-up

The Philosophical Ramblings of a Baby:
Well, I think it's safe to say (finally!) that I am doing really well at this point in my life.  Yep, I have to remind mama and daddy of this every so often, but it's true, it's okay to be glad and positive about me any these pesky bones of mine.  Who knows what the future holds, but right now things are looking up.  There will be set-backs, as there are with anyone. OI or not.  

6-Month Check-Up
I had a doctor's appointment on Monday for my 6-month check-up.  Someone remind me NEVER to go back to the doctor EVER AGAIN!  What, do they like seeing babies cry or somethin'?! Jeez, people.  Anyways, it wasn't my regular doctor, so mommy was way anxious..chewing her lip and nails (gross mom, we're in a doctor's office...GERMS!!).  
She has to remind everyone that I have weak bones, even the doctors, but sometimes they still do things that could hurt me without knowing it, so she has to show them how.  This doctor lifted me up under my arms (yikes!) and I think mama may have almost peed in her pants.  Then the doctor did this hip test thingy on me and I thought my mama was going to crawl out of her own skin, she was wiggling around so much!  I did not like it too much, but I came out unscathed...oh, except for all those shots!!
Anyways, the Pediatrician says I'm right on target with all of my developmental milestones and I look great.  I coulda told you that without getting all those shots, hmpf!
Here's a run-down:
14.7 lbs (25th percentile)
25.75 inches (50th percentile)
head: big! (75th percentile)

Shriner's: Part 3
Well, back to Shriners we went, and the doctors were, once again, impressed with me.  They said I look great and knowing that I have not had any breaks due to the universe's own potion of good-luck juice and everything else good in the world (no, not their exact words!) and not because of starting treatment was a good sign.  Although they would still advise getting treatment to strengthen my bones, the need for it didn't sound so absolutely dire anymore.  Plus, as the doctor pointed out, if I would've started treatment we never would've known how strong I actually am.  We would instead think it was due to the medication. We were glad to hear this!  
That's basically it.  Not too much to report, but mama and daddy were all smiley in the car, but they did knock on wood an awful lot..as they always do....
I go see the Childrens team at the end of November.  Keep putting the good juju out there for me!

xoxo &
lot's of love,
Maggie Shae

p.s. Here are some recent pics of me.  I can go in my stroller without my carseat now because I can hold up my head so well!  



Wednesday, September 26, 2012

Rolling, Teeth and Michigan Trip!

Wow, I know I say this a lot, but SO much has happened over the past few weeks!  Take a look...

Rolling: 
Drum roll please.........
Last night I finally rolled from my back to my front AND THEN from my front to my back all by myself!  And then I did it again and again and again!  My mommy and daddy thought it was the funniest and most amazing thing.  They've been noticing that I've been getting really strong lately.  I am able to hold my head up way more than I ever could and I even started to roll over in my crib in the middle of the night, which makes them feel very worried.  I would just get stuck on my tummy and then grunt until someone came to save me.  I figured I should help them out since I was depriving them from their precious sleep because I wanted to play, so I taught myself how to roll both ways.  Aren't I resourceful?  (As you can see, my vocabulary is improving immensely as well...it must be all of those books I read!)
Now, I know my mommy and daddy say this often, but I think I'm staring to believe that I may just be a genius....
As they said, I was a rollin' fool (and they meant that in the nicest, most loving way, I'm sure)! The first time I did it daddy had his back turned and mommy nearly missed it too, I was so quick.  Then they watched me as I flipped over onto my tummy (which I am a pro at by now) and then I carefully moved my arms up by my head and pushed myself back over to my back.  Once I learned how to do it I just kept going and going until I found myself under the coffee table and all over the room!  Finally they said it was time for bed, and by that time I was all tuckered out anyways.
I'm so proud of myself!  But mommy and daddy say that my days of lounging on the bed or couch are OVER!

Teeth: 
Last Thursday two teeth finally popped through at the same time!  And, guess what?  They were on the bottom! Pulling the old switcheroo, eh?  Those little buggers sure make me cranky sometimes, and I think I'm still going to get those top chompers soon too, so I've been a little sassy.  But you can't be perfect all the time, right?!  If I would let my mommy and daddy see them they could take a picture for you, but I keep them well hidden.

Michigan Trip: 
We went for a quick trip to Michigan last weekend and we had so much fun!  There was a lot to do:
First I watched some college football with daddy (don't bring up the outcome of that game, I'm just sayin'), I went to my first Northville Colts football game to watch my big cousin Tommy show me how to play football, I visited The Victorian Festival and even went to a "Saloon" (my mommy and daddy say they are trying to culture me), and I played a lot with my cousins Erin and Carolyn.  They really had missed me and I had really missed them too!  They held me and I tried to kiss them and lick them and grab their cheeks and they made me laugh and laugh ~ they're so funny!  They showed me all of their toys and they were very careful  and gentle with me.  Grammy got me all kinds of new toys and cloths, my favorite is my new glow worm! She sings to me and lights up and I always try to give her kisses because she's such a nice little glow worm.  And, grandpa bought me a new four-wheeler! Okay, maybe it wasn't for me, but I got a great picture on it!  After seeing how fast my Aunt Shannon went on that thing I don't think my daddy will ever let me on it...but he sure enjoyed driving it!








Here are some other gems...

     I'm transfixed by my new friend

Yep, that's me in my pj's during a late night at The Victorian Festival.  
As you can see, I'm quite the night owl.

It was a great trip and I love visiting my family in Michigan.  I am a city girl and a country girl ~ I'm so lucky!
Well, tootle-loo for now!

Thursday, September 20, 2012

Ho Hum, The Zoo, Volunteer Spotlight, I'm Really Movin'

Hello there!

Ho Hum
Lately I've been humming a lot!  I hum during the day, in the morning when I wake up and when I'm not so awake, and before I go to sleep.  My mommy laughs because she remembers doing a lot of humming  herself when she was little.  She says she thinks that it's because I'm going to be a musical genius and I'm just practicing.  She also thinks it's because I am learning how to talk because I am, again, a genius.  I don't know people, there's nothing I can do about her.  I guess I should just get used to it because we've got a long way to go together!!

The Zoo
I went to the zoo the other day.  Here's a picture of us in front of the carousel.  One day I'm gonna ride that thing!  I can't wait...



Volunteer Spotlight
Hey, hey!  We're featured in this month's OIF newsletter.  Take a look at the article below!  If you would like to be added to their eNews listserv just go to www.oif.org and click subscribe on the left.  They have tons of great information and OI news each month.  

Volunteer Spotlight: Jessica Sheridan
Maggie and parents.JPG
Maggie with her parents, Jessica and Mike.

Three months ago, Illinois residents Jessica and Mike Sheridan’s baby girl was admitted to the hospital with several broken bones.  After receiving a diagnosis of osteogenesis imperfecta, Jessica felt her world turn upside down, “We've never had a major health concern in our family, so hearing Maggie's diagnosis was a real shock to us all.”  While wading through the information, trying to find answers and treatment options, Jessica heard about the OI Foundation’s upcoming national Blue Jeans for Better Bones day.  She signed up to hold her own day and then she took it one step further.  She called OIF Development Coordinator, Melissa Bonardi and asked if she could create an online donation page for her Blue Jeans day since she had a lot of friends on Facebook and a blog where she could share the link.  As Melissa explains, “I’ll never turn down a volunteer who wants to make their event bigger and broader reaching so I happily made a page for Maggie Shae’s Blue Jeans for Better Bones.”
Within days, the link was shared on Jessica’s blog and Facebook page as well as being picked up by the Facebook group “12” who are committed to participating in twelve charities in twelve months. Donations were coming in from several states – including Arizona and Alaska – and two of Jessica’s relatives decided to hold their own BJBB day in honor of Maggie Shae in Michigan and Ohio.  Jessica was stunned by the outpouring of support, “I think that the success we've had for BJBB day is a true testament of the love and support that Maggie, my husband and I receive each day from our loving friends and family.” As to why she decided to hold a BJBB day, Jessica explained, “We all just feel very passionate about helping since there isn't a lot of awareness about OI. We want a cure and we will do everything we can to try to get that accomplished.”
It doesn’t take much to make a difference.  If you are interested in holding an event for the OIF – no matter how big or small – contact Melissa Bonardi at mbonardi@oif.org or 301-947-0083 x31 to find out how. 

I'm Really Movin'
I am really moving around like crazy now!  I am always trying to get both feet in my mouth.  I wiggle and wiggle back and forth, and sometimes all the way over, until I wiggle right off the blanket or play mat (just a few minutes ago I wiggled under the coffee table!).  I talk and yell or grunt and make sounds until someone does what I want, but I can also be very calm and serious. I am a very sweet girl though.  Mostly I like to just hang out and play with my friends, don't we all?! 


"Okay guys, this tummy time is fun and all, but you need to show me how to do this sitting up all by myself!"




Wednesday, September 12, 2012

Hey, Hey, I'm 5 Months Old!

I can't believe it's already been 5 months!  Things are really changing in my life everyday!  I am learning all kinds of new things, exploring and discovering so much each day.


Here are some things that are new this month:
I love to hum and "talk", even at 3:45 in the morning (like last night!)
I roll back and forth to look at things or reach for things and I can go from my back to my tummy with some work, but I haven't tried to go all the way over from my tummy to my back without help just yet.
I love peek-a-boo (usually it's just "BOO!", and I laugh and laugh!)
I love to look at myself in the mirror
I can sit up with help
I love to touch people's faces and I'll grab it with both hands and open my mouth (my mommy swears I am trying to give kisses)
I love being 'dipped'
I am starting to experiment with my exersaucer ~ eventhough I can't reach the bottom with my feet I like to dangle!
I love to grunt to get attention, then when I get it I smile so cute
I sleep until about 9:30 each morning and I (usually) go to bed by about 9:30
The other morning I flipped 180 degrees in my crib.  I was facing the complete opposite direction, and sometimes I end up sideways too!
I love to eat sweet potatoes and I like bananas and apples.  Rice cereal is a little boring for me now!  My mommy tells me I will be trying green beens, parsnips, and carrots soon.
I LOVE to be read to and sung to.
I LOVE dancing to music.
I LOVE going for walks and I turn my head to see everything that is around me.
I'm not sure how long I am or how much I weigh, but when my Papa measures me he says I'm about 24.5" long, and I must weigh about 14 pounds by now (but mommy and daddy swear it's more)!




Saturday, September 8, 2012

Sorry for the wait...

Wow, we have been really, really busy lately!  Sorry I haven't been filling you in on everything Maggie Shae, but here's a re-cap..... 

BJBB FInal Total: 

As it stands today we have raised over $4,400 for OI!  Can you believe it? 
When we started we had hoped to raise $1,000, and we thought that was a lofty goal, but we far surpassed that and kept going!  Words can never express the gratitude we feel for everyone who helped and supported us.  It was a lot of work, but we hope to be able to raise money and awareness at least one time each year.  My whole family is really determined to raise awareness because they really want a cure found.  For everyone who donated and shared their love, you are helping us reach this goal!
Thank You!!
We were contacted by the OI Foundation about being in their September eNews bulletin's quarterly Volunteer Spotlight segment for our work raising money for BJBB Day!  I'll be sure to let you know when it hits the press!

  Thank you for supporting us!


"Boy or Girl?", grrrr
Okay, people, I get it.  I have short hair and I don't wear bows, but when I'm in head to toe pink isn't that enough for you to know that I'm a GIRL??!!
Yes, this is to you Mr. Podiatrist, waitresses at the Chinese restaurant, clerk at Walgreens and the countless other passerbys who exclaim, "Aw, what a cute little guy", or, "aw, how old is he?".  I mean,  my mommy tries so hard to make it obvious, to no avail!  Oh well, at least people think I'm cute, hehe.

I escaped from The Big House of cuteness!

Rollin' with My Homies
I am so close to rolling over!  My mommy is constantly whipping out her camera to take videos of me, but when she does I usually get stage fright and stop.  Most of the time now, when I'm laying on my back, I will arch and look behind me, usually to try and see my favorite toys or to get something in my mouth.  Everyone thinks it's really funny, but I just want to chew on something!!  My mommy and daddy think I am going to turn myself over without even knowing it soon.  Little do they know, everything I do is deliberate.  I'm very smart....
I am usually rolling on my back, left and right, and I'm getting very good at it.  Sometimes I wiggle around so much I turn in a big circle or wiggle off the blanket!  When someone helps me turn over all of the way I now know how to get my arm out from under me and move it to reach for things.  I also am getting really good at holding my head up and looking forward, and I'm working on turning it all the way from side to side to look at all of the interesting things around me.
Everyone says that I am very observant, whatever that means.  I just know that I love to look at everything, and there's a lot to see! 
Here are some of my favorite things to do:
I LOVE my octotunes pal.  He is bright, yellow, and smiley and his tentacles honks and toot and make all kinds of sounds that just crack me up!  I also love my cow toy that my cousin Adrienne gave to me.  It rolls back-and-forth and says "moooo" and it has a mirror on it.  I love anything with a mirror nowadays..
I also LOVE to dance around.  My mama sings Love Shack and My Best Friend's Girl and we dance and I smile and laugh, mostly at her because, let's face it, she's craaaazy.
I love my little green fabric ball-toy that my cousins Carolyn and Erin gave to me too.  It's got all kinds of thingies that I can grab and, of course, chew and suck on.
And, I love to eat sweet potatoes and rice cereal!









Saturday, August 25, 2012

Road Trip! and, A New Taste


Road Trip!
Yesterday we all went on a road trip, and I'm not talking 4 hours to Michigan, I mean 8 HOURS to visit The Swanson's in Kansas City!!  On the way we stopped in this place called Iowa City and I think my daddy actually started drooling like me!  He was pointing out all the places he loves so much because this is where he went to college.  He had the goofiest grin on his face and he was just so excited to be there! He and I took a picture in front "Old Capital" and he said that I would be back in about 18 years.  He was telling my mommy how The University of Iowa was voted the #4 party school and my mommy said that she's not so sure Iowa is the place for me...
The drive wasn't so bad.  We saw lots of corn fields and grass fields and wheat fields and any kind of other field you could ever imagine.  My mommy said, "This is the place for me!", and my daddy said, "NO WAY!".  I guess opposites do attract!
After about 7 hours of fields I started to get boooored!  No one was listening to me complain, so I knew I needed to turn on the waterworks to get any kind of break from this madness.  I screamed for a good 15 minutes, and then I puked, and then they took me out!  So my plan worked...kind of.
I was so excited to see my aunt and uncle and cousins, and they were so excited to see me too!!  I was so glad to be here.  I hope I don't have to get back in that car seat for a long ride anytime soon, but they tell me that they are nervous for Monday morning.  I'm not so sure why though....

A New Taste
Sweet potatoes, blueberries and carrots, oh my!
This morning another new adventure happened.  I ate real food!  My mommy and daddy put me in this big seat thingy and put this giant bib on me and they stuck this smooshy stuff in my mouth.  At first I made funny faces and everyone laughed at me because it was a new taste for me.  It was a wonderful taste!  I can't wait to have more of that stuff!!
Here's a video.  I hope you can see it:



Thursday, August 23, 2012

Gettin' Schooled; I Found My Feet; and, James Brown!

Gettin' Schooled
Surprise, surprise! My mommy and daddy are still trying to figure out what to do about my treatment.  My daddy has been so busy at work, but he still takes time out of his busy day to call all kinds of doctors to try and figure out the best treatment plan for me.  He's called all over the country: Baltimore to Omaha (wherever those places are!), and what he found out is that all of these different hospitals aren't even really talking to one another about this kind of treatment.  Now, isn't that a silly thing to be doing? Hmmm, my mommy and daddy were confused about it too, but I'm used to the confusion by now.....
It seems that my mommy and daddy need to learn all they can about this because every doctor has a different treatment plan, and it doesn't seem like any of them are sharing their findings with one another.
There is a special doctor in Baltimore who wants to do more about this though.  He is calling around all of the other doctors to see how they do their treatment.  I hope he helps everyone try to find one way of doing this because it is frustrating for people who are just trying to help their kids.  My mommy and daddy aren't doctors, but they really have learned a lot and have to know as much or more than the doctors do.  My mommy is also talking to some nice moms from this Yahoo! OI group she joined.  She posted a question about treatment and two nice ladies wrote back about their stories.  This makes my mama feel better because it's nice to talk to people who are going through the same things as us.  They gave her good advice about gettin' schooled in all things OI because we have to be our best advocates.

I Found My Feet!:
Now let's get down to the most important topic...my feet!
The other day I was just hangin' out, like I usually do, looking for something to grab and stick in my mouth when, Eureka! I had found something interesting.  I pulled and tugged, but it wouldn't come close enough to my mouth.  My mom got all excited and up in my face, smiling her toothy grin and acting all happy, saying something about something (that's how it usually goes).  I didn't really pay any attention to her until later on, when I did it again.  I looked down and, holy Toledo! The thing I was grabbing was my own foot!  You know, I have been trying for about two or three days now to get that tootsie in my mouth.  It's close, but no success just yet.  You'll be the first to know when I get it...well, after my mama and daddy, of course.

My mommy says she often puts her foot in her mouth too, 
but I've never seen her do it. She confuses me sometimes!


JAMES BROWN!
Yesterday I sure was a crab-a-saurus, that's what my mama calls me when I get crabby as all get-out.  I know, you didn't think it was possible that I could do anything but smile and be prefect, right?  But I'm learning real quick how to do this thing called crying when I want something RIGHT NOW!  And it seems to work real good.
Anyway, since I decided to stay awake as much as possible yesterday and I slept for oh, about 40 minutes all day long, I wanted to give my mom a break today so I slept and slept.  When I woke up though the miracle that is James Brown and The Beach Boys was before me.  My Papa always gives me music lessons each day that I see him, and I'm not talking about Elmo or lullabies (although I secretly love those too).  I'm talking about The Beatles and the like.  True musicians!  I was dancing and singing today.  My mom even took time out of working to come in to watch me go at it, although by that time I was a bit worn out.  When I dance I throw my hands out and make my chair rock back and forth and I scream and make sounds.  Everyone thinks it's quite a sight.  I hope you can see me in action one day!