The Adventurous Life of Maggie Shae!: a song to make you feel good

Monday, July 2, 2012

a song to make you feel good

Mike and I have decided that this is going to be our anthem.

It's a Jason Mraz song and if you've never heard it you really should listen to it. We are totally biased because we love him and have so many great memories from his concerts and his music in general, but when we got into the car to come to Michigan the other day we started listening to his new album and this song just really made sense to us. I'm sure you'll agree.

Living in the Moment

If this life is one act

Why do we lay all these traps?

We put them right in our path

When we just wanna be free

I will not waste my days

Making up all kinds of ways

To worry about all the things

That will not happen to me

So I just let go of what I know I don't know

And I know I'll only do this by

Living in the moment

Living our life

Easy and breezy

With peace in my mind

With peace in my heart

Peace in my soul

Wherever I'm going, I'm already home

Living in the moment

I'm letting myself off the hook for things I've done

I let my past go past

And now I'm having more fun

I'm letting go of the thoughts

That do not make me strong

And I believe this way can be the same for everyone

And if I fall asleep

I know you'll be the one who'll always remind me

To live in the moment

To live my life

Easy and breezy

With peace in my mind

With peace in my heart

Got peace in my soul

Wherever I'm going, I'm already home

I can't walk through life facing backwards

I have tried

I tried more than once to just make sure

And I was denied the future I'd been searching for

But I spun around and hurt no more

By living in the moment

Living my life

Easy and breezy

With peace in my mind

With peace in my heart

Got peace in my soul

Wherever I'm going, I'm already home

I'm living in the moment

I'm living my life

Just taking it easy

With peace in my mind

Got peace in my heart

Got peace in my soul

Oh, wherever I'm going, I'm already home

1 comment:

IvyJuly 11, 2012 at 10:22 AM
Beautiful song and words to live by. Thanks for sharing.
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Adventures in Blogging...

At 6 weeks old, after a very low-risk pregnancy, our first-born child was diagnosed (very unexpectedly) with Osteogenesis Imperfecta (OI), or Brittle Bone Disease. OI is a rare disease with no current cure.

Understanding OI can be confusing. It is not black and white. Each case of OI is unique and each patient is affected differently. Although each person affected has one thing in common: weak bones that can often break easily - one person can have hundreds of breaks in a lifetime, while another only suffers a few.

There are still many questions to be answered about OI.

This disease is unlike any other and we, along with the medical community, are learning more and more about it everyday.

What we know for sure is that many people are confused by it, including many doctors and medical professionals. Through no fault of their own, many do not study it thoroughly (if at all) in medical school. We've had to explain it several times to medical professionals we've encountered at hospitals, including ER staff at well-known Children's hospitals. Many times we hear from these professionals, "oh, yes, I've heard of that," but many have never seen or treated a patient with it. This can be scary since even just handling a child with OI can cause breaks. These are the very significant issues with OI: awareness, education, training of medical staff and research.

We originally started this blog to communicate Maggie's daily progress and doctors visits more effectively with all of our family and friends. Most of the time we put a fun spin on it by having it written in her voice. We also wanted to help others who may be confused and going through this same initial shock, as we were. We searched for others like us and for any information we could find. Sadly, a lot of it was even more confusing and scary. Lastly, we wanted to give Maggie 'a voice' before she even had one.

However, now that we've been living with the effects of OI we've come to realize that raising awareness about this rare and underfunded disease is what really matters most. By spreading awareness, as is the case with many other "popular" diseases, the general public and medical community can become more aware of how to effectively treat patients, and, most importantly, development for much needed new treatments and a cure can be funded.

Our lives have been forever changed from what we thought our expectations of it were. We've had to rearrange our lives and our daily activities because something as simple as getting bumped into at a splash park can result in a traumatic public display and a visit to the ER with a compression fracture of the spine. Sadly, these events are not uncommon for most families living with OI.

But we are on a new path now and determined to always make the best of the situation. Knowing silly, sweet, smart, sassy, strong Maggie, anyone can understand this. We feel fortunate that Maggie's case has been labeled 'mild'.

It wouldn't be right to say all of this without acknowledging all of our caring family members, friends, medical professionals and perfect strangers who have come into our lives and shown us love, understanding and support each and every day.

We hope that others can find humor and solace in the everyday adventures that our little family stumbles through, find hope in our journey and, ultimately, spread awareness about Osteogenesis Imperfecta along the way. Thanks for helping us achieve this goal!

To find out more please visit: www.oif.org

Monday, July 2, 2012

a song to make you feel good

1 comment:

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