Another Visit to Children's, and More..

Wow, November has really flown by!
Let me fill you in on all of the wonderful adventures that I've had these past few weeks...

Happy Birthday Daddy!
My Daddy had his birthday on the 19th.  My Mama and I walked up to a cute little cafe and bakery called Bittersweet and spent way too much on cute little tarts and cakes for him, but it was well worth it for that special guy.  Then Nana and Papa came to visit and we all went to one of my Daddy's favorite places...A Scottish Pub!  My Mama and Daddy say that they just want me to be cultured, so they like to take me to all different places.  I guess they were teaching me about Scottish tradition.  One thing I learned: those Scots sure do enjoy their beverages!
Later on I went to Nana and Papa's house while Mama and Daddy went out to celebrate with friends.  I had a great time that night!  It was a great birthday..and I hope my Daddy had fun too ;)

Thanksgiving
It was my first Thanksgiving, and this is what I learned: Thanksgiving rocks!  Play, stuff your face and have a dance party with your family? Awesome!
Mama, Daddy and I made the road trip to Gramma's house and I did a great job in the car.  I was so excited to see Gramma!  The next day we cooked (well, let's be real here, Gramma cooked) all that delicious food and then everyone came over.  I had so much fun watching my cousins..they are so crazy!  We played and played and it was a very fun time.  Then finally we ate.  All that time spent cooking the food and it didn't take us very long to eat it!  Before I knew it we were all done, and then the real party started!  We moved the coffee table and played a funny dancing game.  Everyone got into it.  Well, everyone but Daddy..what a pooper!  I don't know what he was so afraid of, everyone knows that Mama, Aunt Brandy and Gramma don't have a problem making fools out of themselves!  But I guess Daddy needed a little warming up because at the end everyone was dancing!
Anyhow, my first Thanksgiving was a real hoot.

A Special Visitor                                                                                                                                A special visitor came to see us.  It was Melissa from the OI Foundation.  She was in town and met us for dinner at a very special place called Mrs. Murphy and Sons Irish Bistro.  It is one of Mama and Daddy's favorite places because it's where they got married, back when I was just a glimmer in their eye...as they like to say.It was so nice for us all to meet Melissa, and Mama and Daddy were very excited about it.  The OI Foundation has really helped us learn more about OI, and they help support us as we continue to raise funds and awareness for programs and research to one day find a cure.  Melissa and everyone she works with are so helpful and encouraging while we learn how to do all of these new things.  It feels very special to know that there are many people out there helping us along the way, and we were glad she took time out to spend it with us.  Thanks Melissa!  

A Visit to Children's

I had a check-up at Children's.  I go see the Genetics and Ortho teams at the Skeletal Dysplasia clinic there every few months.  Mama and I took a train ride downtown and then we walked along the busy street to get to the new hospital.  We used to go to the one closer to home and we would drive or walk, but they built a brand new hospital right smack in the middle of The Magnificent Mile, so we met Daddy there for our appointment.  And it sure was magnificent!  I couldn't get enough of all that was going on around me as we walked there.  And when we arrived I was real excited to see Daddy!

We see two very good doctors there, and they sat with us and answered all of Mama and Daddy's questions....every. single. one. of. them!

Mama and Daddy told me that at one time they weren't sure if they liked going to this hospital because some pretty scary things happened to me, and them, when they first brought me there.  But I think they have changed their minds because each time they meet with the doctors they seem to like it more and more. 

(I think it helps that each time we go we seem to get better and better news!)

And here it is:

They say I look great!  (And I could've told you that!)

They say that my ribs don't look thin, as was told to Mama and Daddy in the beginning when this all started.  They also said that there is no compression fracture in my spine as well (or any issues with my spine to be exact), as was originally told to us in the beginning. Which gave my Mama and Daddy a great big sigh of relief!  What great news!! 

The doctors said that because I seem to be meeting my developmental milestones and growing and getting stronger that this is a very good sign for my future.  We thought that, but it's always good to get reassurance about these kinds of things!  Especially from 'the professionals'!
You see, OI is not black and white.  It is very, very, very gray.  The spectrum of characteristics is very, very broad, even in people with the same "type".  The good thing is that they say I seem to be much more intermediate than severe (which is what they originally thought I was) and they continue to say that they don't think I need treatment, for now.  And that's good for me because I get enough needle pokes as it is at the pediatrician..hmpf!!  Also, they said they don't need to see me again for 6 months (instead of 3, as they were seeing me before) since I seem to be doing so good - yay me!

I still need to be treated with care because the likelihood of me breaking something at some point in my life is greater than most, but all-in-all they were very pleased with how I'm doing.  And so are we!  

I also think it may have something to do with my special Guardian Grampa watching over me. 

What a great way to end a great month...

December, here I come!

And here are some pictures from Thanksgiving:

   

I miss my Michigan family and hope to see you soon!