Results Are In

Yesterday evening (my 34th birthday) I got a phone call from Genetics that confirmed a diagnosis of OI for Maggie.  They think she has either Type III or Type IV.  When Mike got home he called them back for the specifics.  I, of course, didn't want to ask those types of questions.  I'm okay knowing that she has it and moving on with living our life.  She seems so healthy and strong, I just don't want to cloud our lives with thoughts of things she might not be able to do.  There is a lot of crazy stuff out there on the internet.....
I'd rather assume she will be able to do everything because I think it's better for all of us.

Plus, being the eternal optimist, I basically believe that everything will be okay until it isn't.

It is a very odd feeling and I can't even really put words to it.  Sometimes I think back to when I was pregnant or when she was born, and everything seemed so simple.  You really take things for granted until something life changing happens. 
With that said, I'm looking at my sweet little girl sleeping here and I know that she has no clue this is all going on.  She is just a child.  How she is treated will determine how she lives her life.
We have a long, difficult road ahead of us. Being a Special Ed Teacher I know what lies ahead for her physically and, even more worrisome, emotionally.  I think maybe this is what worries me most.  You don't want your children to hurt in any way, and mine will be hurting both physically and emotionally.

So, I have my moments but I know that there is nothing we can do but make her life the happiest it can possibly be.
I've never believed this more:

Life is what you make it.  

Nerves

We have our appointment with Shriner's on Monday.  We are anxiously awaiting it because we feel like it will give us so much more insight into all of this.  We've had such a horrible experience with Children's, but we've heard such wonderful things about Shriner's.
Friday I get my tests results.  I got some blood work done as soon as we found out Maggie may have OI because there were just way too many weird things that happened before and during my pregnancy. In reading about different deficiencies that a pregnant woman could have and how that can affect a growing baby, and given how healthy and strong Maggie seemed, we thought maybe something had been overlooked (thyroid, parathyroid, vitamin D).  I guess we'll find out soon enough...

2 months

 Happy 2 month Birthday Maggie Shae!  

A Day in the Life

It takes my Mom forever to do anything!                                                

She keeps telling me that I need to get used to it because she is a serious procrastinator (whatever that is).  Anyways, I waited for hours today to go on that walk she talked about.  I just sat there in my bouncy chair staring at that lion dangling in front of me, all happy with that goofy smile.  Every day I try so hard to get him. I can sometimes get that monkey, but he just rattles.  The lion is the one I want. One day he will be mine, oh yes...

But I digress…

Finally we left for our walk.  I was feeling good, catching some rays, lookin’ up at the trees, checking out the neighborhood.  Then my eyes started feeling very heavy and I knew I was going down.  Next thing I remember we were back home.  Man, I try to stay awake for our adventures around the city, but my car seat is so cozy…  

I've been feeling much better lately.  I'm glad good old righty is back in shape and flailing around like lefty.  It’s much easier trying to get that lion with two good arms... 
I'm still wearing my special harness.  My mom is real finicky about it, but I hardly even notice it's on.  She says I'm gonna stink since I can't take a bath, but she gives me a sponge bath every day, so I don't know what she's worried about.  She even bought me a new bath tub so I'm more comfy taking a bath when I get it off.  I can't wait to use it!  

My Mom and Dad are a riot!  They make funny noises at me and I do it right back to them. They seem so surprised each time I do and they think the sounds I make are very funny.  They're very easy to entertain.  I don’t want to reveal all of my many talents just yet though.  So far I’ve shown them smiling and cooing.  Today I gave my mom a bit of a tease by almost laughing, but I thought I’d hold off on that for a bit.  I thought I gave the woman a heart attack the way she reacted.  I think I’ll smile and coo a little longer to play it safe.

my almost laugh

Anyways, something new happening in my crib...

A mobile!  I'm so lucky!  I've been wanting one forever...or, at least as long as I've been sleeping in my crib.  Mom and Dad got it for me and I was so glad because things were getting pretty boring in my room, no offense.  I mean, there’s only so long that a gal can make a white ceiling seem interesting, if you know what I mean.  But it is fantastic!  All colorful and spinny and musical.  Sometimes I don’t even want to close my eyes because it’s so wonderous.  Mom and Dad don’t like that too much, but it’s just so interesting.  Maybe my Mom will post a picture so you can see it and all its glory. 

Well, I can’t wait to see what happens tomorrow.  Mom and Dad say I'm turning 2 months old.  I hear that 2 months is the new 1 month, so I'm feeling pretty good about it...                                              Every day is a new adventure!

Here I am in my Pavlik harness.  It helps my femur heal correctly.  More importantly, here's my new mobile! 

                                                         

Here We Go!

Well, well, well...here we are. 

Over the past 8 weeks Maggie and I have had many a conversation.  What else are a new mama and a new baby to do with their time everyday but get to know each other, right?  

Well, to my delight I found out that she has a passion for blogging (it must have been all of those crafting blogs I read while she was in utero).  I must admit, I've always wanted to start one as well, but wasn't really sure what to write about.  But now that Super ShMags is here with her brilliant ideas I think we've found our niche.  For those of you who know her you'll agree, she's just far too super not to write about! 

Although Maggie is a super awesome baby with super awesome ideas, she hasn't yet mastered typing, so I will have to do that for her.  Although most of these posts will be hers, I may throw my two cents in every now and then as well... 

And so beginsThe Adventurous Life of Super Maggie...  

Although she's only just begun her life, she has already experienced a lot.  But more on that later.  This blog serves as a chronicle of all of her adventures to come, good and bad (but mostly good!).  It will be a bumpy ride, no doubt, but we invite you to strap in and come along with us.  Just prepare to be enlightened by one special little girl's adventures.  

It might just change your perspective on things....

~Jessica